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Support Lines Volume
2, Number 2 January 22, 2004
Visit us on the Web at
http://www.pabia.org
"The trouble with
the world is that the stupid are cocksure and the intelligent full of
doubt." -Bertrand Russell
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"Facts do not cease to exist because
they are ignored."
-Aldous Huxley
In This Edition
"We are what we repeatedly do.
Excellence, then, is not an act, but a habit."
-Aristotle
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The best
way to cheer yourself up is to try to cheer somebody else up."
-Mark Twain
Editor's Note
Hello Folks,
Much is happening in the peer support movement in and around Pittsburgh.
The PABIA Support Group Development Committee has changed its name to
"Brain Trust" and continues to help people interested in creating new
groups.
A New
Focus group forming in Pittsburgh to address the
interests and needs of adults recovering from Brain Injury who are
facing the challenge of professional role continuation, and those who
seek reintegration into educational and career settings.
Individuals striving to overcome the hidden
consequences of Brain Injury to achieve or maintain increased levels of
independence and community functioning are encouraged to attend.
This peer directed, professionally facilitated
meeting is being formed as a collaborative endeavor between members of
the Pittsburgh Area Brain Injury Alliance Support Group Development
Committee and University of Pittsburgh faculty and graduate students in
partnership with the TBI Model Systems Grant Project.
Under the direction of Michael McCue, PhD. and Mike Pramuka, PhD,
graduate student Ramona Ragano has agreed to facilitate these meetings
for approximately one year in return for course credit.
University of Pittsburgh Doctoral Candidate Lisa Taubman, along with
Malin Lowenadler-Shadel and John Pistorius of the Brain Trust will work
with Ms. Ragano directing the new support group effort.
This Focus Group is scheduled to begin meeting bi-monthly in February
2004.
We have tools available to people
interested in developing a peer support group or focus group meeting.
Members of the PABIA Support Group Development Committee provide hands
on assistance, email newsletter notification, aid in generating Meeting
Notice Posters, Brochures, Press Releases and much more.
Anyone interested in attending this meeting can
contact John Pistorius at
jp@pabia.org or call 412.481.5482. If interested in helping
to create or facilitate new peer support groups, please
click here to contact the Support Group Development Committee.
John Pistorius
I care not what your education is, elaborate
or nothing, what your mental calibre is, great or small, that man
who concentrates all his energies of body, mind and soul in one
direction is a tremendous man. -De Witt Talmage
Western PA BIM / HS
Recreational Bowling League
Where:
Fun Fest Entertainment Center, 2525
Freeport Road, Pittsburgh, PA 15238
WHEN: Monday Jan 26th, Feb 23rd, March 22nd and
April 19th.
COST: $7per person, Bowl 3 games, Includes
shoes, 2 slices of Pizza & unlimited fountain drinks.
TIME: 3:30 PM TO 6:30 PM on Lanes #35 to 40
Bowling at Fun Fest is Wheel Chair Accessible and there are Bowling
Ramps.
For more information contact Tom Byrnes @ Brain Injury Management,
412-531-0343.
"Come to the edge He said. They
said: We are afraid. Come to the edge He said. They came. He
pushed them, and they flew..."
-Guillaume Apollinaire
Free Prescription
Drugs
Print this and save for future reference
You can call the Pharmaceutical Research and Manufacturers of
America at 1-800-PMA-INFO. They will send you a list of all the
Pharmaceutical companies that run free prescription drug programs.
You can also visit them on the web at
http://www.helpingpatients.org/.
Other Web sites that provide information about
government-supported and private patient assistance programs:
Many companies have no income guidelines. You only need to tell
them that you are having difficulty paying for your prescription
drug. Contact the manufacturer of the drug, tell them your
circumstances, and ask them about the requirements. Usually, you
have to take a form to your doctor to sign and within two to three
weeks after you send in your form, you get the drugs sent to your
doctor for free.
"A dwarf standing on the shoulders of a giant may see
farther than a giant himself." - Robert
Burton
PABIA MEETING BRIEFS
Monroeville and Indiana Twp.
The Monroeville Area meeting was held January 8, 2004 in the Parlor of
the Cross Roads Presbyterian Church, 2310 Haymaker Road, Monroeville,
Pa. Seventeen person's attended. The main topic of discussion was
related to public school officials lack of awareness of Brain Injury
and related issues.
The Indiana Twp. meeting was held January 13, 2004 in the McLaughlin
Education Center of HealthSouth, Harmarville. Sixteen people attended.
After introductions, participants discussed, COMMCARE Waiver
experiences, CAT Fund concerns, and a scheduled Bowling event.
"It is no exaggeration
to say that every human being is hypnotized to some extent, either
by ideas he has uncritically accepted from others, or ideas he has
repeated to himself or convinced himself are true." -Dr.
Maxwell Maltz
Digging in, Planting, Fertilizing and Watering
-by John Pistorius
A Theory of Cognitive Dissonance was first introduced in 1957 by
Leon Festinger. His theory was that human behavior is directed by a
tendency to avoid dissonance (inconsistency) and to achieve
consonance (consistency) in the order of cognitive
experience.
Previously, I’ve explained and described how an
individual reaches a state of Cognitive Dissonance when they have an
imbalance between an attitude, emotion, belief or value, or even a
mixture of these. In this part of the series, I’ll tie in issues
related to Brain Injury and disability to help readers learn to
deliberately overcome dissonance.
Sources of Dissonance can include new information that
differs from our accepted position, uncontrollable circumstances,
logical inconsistency, inclusion of a specific attitude within a more
general attitude, cultural mores, and inconsistency with past
experiences.
It is the avoidance of pain that drives the individual
to seek consistency by eliminating contradictions. One way to reduce
Cognitive Dissonance involves distorting the truth, which can cause
wrong decisions. The drive to regain cognitive consistency or
consonance among beliefs, ideas and attitudes motivates us to do
whatever we find is easiest to eliminate or reduce inconsistency in
our mind. We may not necessarily seek truth, only consistency.
Festinger studied a group of people who were deluded into believing
that a space ship was going to be picking them up on a certain date to
save them from a flood. When it did not happen, what do you think they
did? The leader of these people received another ‘divine’ message: the
world was saved through their faith. This led the believers to become
more faithful than ever. Given the failure of a precise prophecy, we
might expect the opposite, that is, to abandon the beliefs produced by
the earlier prediction. However, Cognitive Dissonance Theory says
otherwise. It was too painful for these people to admit that they were
mistaken. They had invested far to much in their belief.
People experience Cognitive Dissonance whenever
traumatic events occur. For example, many people sustain Brain Injury
every year. Some are injured severely and their abilities are reduced
significantly. Many face serious physical and cognitive impairments.
Others are mildly or moderately injured and left with varying degrees
of ability. Substantial differences exist among this diverse
population. Some receive medical and habilitation services. Others do
not. Both sets and subsets of people continue to live after their
injuries. Survivors experience Cognitive Dissonance when their lives
are altered by deficits and disability which do not fit into their
self-perception. Oftentimes, individuals describe a ‘loss’ of a sense
of themselves and family members describe their loved one as "a
different person" post injury.
Learning About Brain Injury and Cognitive
Dissonance
Medical schools teach the currently known consequences
of brain injury. They teach symptom-based strategies of ‘fixing’
whatever is 'broken.' Hospitals and rehabilitation companies are
staffed with people who understand many facets of brain injury,
cognitive impairments and disability. They meet and treat a percentage
of the population of people who survive Brain Injury. However, they
never get to meet a full representative selection of those who survive
because of the vast number of people who never come through their
doors. Understandably, this limits their comprehension and knowledge
base of the full scope of Brain Injury Survivors. Nevertheless,
habilitation focuses on overcoming whatever is perceived to be ‘wrong’
with the individual instead of working within the person’s abilities.
And that is one very difficult nut to crack among the funding sources.
Too much dissonance occurs to accept that we would better the outcomes
of people by assisting them in developing their abilities instead of
focusing on whatever doesn’t work the way it once did.
To many a person who works in the trauma center, most
of the people who sustain brain injuries fit into a category of
moderate to severe. People who meet survivors in a rehab setting might
categorize most or all of those individuals into certain
classifications of disability and impairment. Their professional
experience ‘teaches’ medical company employees to believe that ‘all’
people who survive Brain Injury are similar or the same.
Now, let us look at another societal influence. Our
current mass media projects a certain perception of Brain Injury,
cognitive impairment and physical disabilities. Society has become
‘conditioned’ to believe certain things about ‘all’ people who sustain
Brain Injury. These beliefs can limit the general public from fully
understanding the issues, concerns and implications of Brain Injury.
And they set the boundaries within which most people operate in
relation to their thoughts regarding individuals who sustain Brain
Injury. The general public’s thought garden is bound like a narrowly
defined precinct within which they only permit certain ideas to grow
and flourish. This is because they are restricted in their consumption
(water and fertilizer) of accurate, relevant information. Everyone’s
understanding is limited to varying degrees.
Perceived Differences Cause Dissonance
Humans are uniquely wired to perceive differences. Yet
with three billion letters in the DNA map, only one in 12,000 is
different from others. That makes us 99.9 % the same, regardless of
abilities and surface appearance. Some people who survive Brain Injury
become different-looking because of their physical impairments. Armed
with societal or media-based information or medical model-based
education, our encounters with people who appear to be functionally
different from us can lead us to believe or feel that we are superior
to them. This is because of conditioning. We have preconceived
attitudes and judgments about what constitutes ‘normalcy’ in
appearance and function.
The people who survive Brain Injury that exhibit
visible change in physicality, behavior, thought processing and
emotions post injury, do not fit into our notions of ‘normal.’
Therefore we might think differently of them or treat them
differently. We might even feel uncomfortable in their presence. That
discomfort would be due to the disharmony that exists between what we
see and our preconceived ideas, judgments and opinions. And it could
be based upon our fear of Brain Injury. The problem is that we would
be basing our superiority judgment on the status of functional and
appearance characteristics, not on any valid measurement of whom, in
fact the individual is. Most would agree that this is like racism.
If someone does not look different from us, we might
not know that they have sustained a brain injury. Therefore, unless
they tell us, we might not treat them any differently. Would you
agree? I know this to be true from within my personal experiences. In
fact, I’ve spent many years testing this idea as I interact with
others. I’ve met numerous people who ‘pass’ as non injured. Many
blacks ‘passed’ as white after the end of slavery too.
If we learn that a person survived Brain Injury,
Cognitive Dissonance occurs because they appear to be ‘normal’, as per
our judgment, yet do not fit into our notions of people who survive
Brain Injury. It is at this point that we must invest energy into
resolving the conflict between our belief in one sense about
‘normalcy’ and what we believe in another sense about Brain Injury and
cognitive impairment. Often, people rationalize away the dissonance.
It has also been my experience that many people invoke
their ideas of superiority over the individual who admits to having
survived Brain Injury once they face the Cognitive Dissonance caused
by the inconsistency between their ideas and the reality. The
discomfort felt at a discrepancy between what we already know or
believe about Brain Injury, and new information or interpretation is
Cognitive Dissonance. It becomes necessary therefore to accommodate
new ideas to eliminate the dissonance or to dismiss the new
information, even if uprooting the new information is illogical.
The strength of the dissonance is affected by two
factors: the number of dissonant beliefs, and the importance attached
to each belief.
Ways to Eliminate Dissonance
Choose to:
- reduce (prune or cut down) the importance of the incompatible
beliefs, or
- add (plant, water and fertilize) more agreeable beliefs that
outweigh the dissonant ideas, attitudes and beliefs, or
- mutate the dissonant beliefs, ideas or information so that
they are no longer inconsistent with those which you hold dear.
Often, rationalizing becomes the shovel to dig Cognitive Dissonance
out of our thought garden. Individuals experiencing dissonance will
often focus on facts, logic, or experience which reinforces their
existing world view in order to resolve dissonance. In most instances,
the (new) offending inconsistent evidence is dismissed (uprooted)
totally as a result of this narrow focus on existing compatible
beliefs, judgments, ideas etc. The individual seeks out semi-logical
conclusions using their current ‘garden’ of thought material and newly
created consistent ideas in order to find a way to invalidate the
inconsistent evidence. Whenever someone is faced with learning
something which contradicts what they already think they know,
particularly if they are committed to that prior knowledge, they are
likely to resist the new learning.
Dissonance often leads to:
- misconception or misinterpretation of the fresh information,
- rejection or refutation of the new information,
- seeking support from those who agree with your convictions,
- and attempting to persuade others to accept your belief.
Racism is a prime example. So is discrimination against people with
disabilities.
Converting people from one set of beliefs to another about Brain
Injury and those who survive Brain Injury has been one of my most
difficult challenges. I’ve faced it in my personal life, in society
and among the people who have been formally taught within the medical
community. As difficult as the struggle has been, my family has been
easiest to convert.
Belief verification is easy when we surround ourselves with
like-minded people. Ralph Waldo Emerson said, "People
only see what they are prepared to see."
When we become committed to an important view that is
specific enough to be considered unmistakable, we resist learning new
information that confronts our accepted position. However, it can
become easier to plant the new information and fertilize it with
evidence to support rooting and growth into our thought garden when we
are isolated from the group. Unfortunately, barring any unforeseen
catastrophic event, we are rarely if ever isolated from our sphere of
influence.
We avoid information that is likely to increase dissonance. We
become comfortable traveling the same path to familiar destinations
like to work, a favorite restaurant or grocery store to protect
ourselves from the possibility of dissonance. To reduce our chance of
experiencing dissonance, we choose reading material, television
programs and movies that are consistent with our existing beliefs.
Likewise, we surround ourselves with people that we believe are
similar to us and we avoid others who we perceive to be different from
us. This is especially true regarding narrowly focused, like-minded
people. The people we surround ourselves with become our ‘peers’ who
buffer us from ideas that could cause discomfort. In that sense, the
process of making friends is an example of selecting our own
information to support our beliefs. We subscribe to many systems of
propaganda in our lives that shield us from dissonance.
Groups and Consonance
We join or form the following types of groups and organizations to
increase consistency in our cognitions: cliques, fraternities,
societies, clubs, leagues, associations, gangs, confederations,
guilds, fellowships, teams, crews, support groups and committees.
Some of the above are formed by people having a common interest,
activity or purpose. Others form on occasion by chance. Think about
the set of friends you surround yourself with. What kind of people do
you permit within your circle? What kind of ‘crowd’ do you ‘run’ with?
Reflect upon the groups you have belonged to or still do. What kind of
dissonance producing ideas motivate people to join. Why did you join
the frat? Why become a member of the Elks, Moose or Eagles? Why do
children join gangs? How do cliques form? Each of these illustrates
the avoidance of dissonance in different ways and degrees.
Dissonance theory applies to all situations involving attitude
formation and change. It is especially relevant to decision-making and
problem-solving. The generation of dissonance can be a major feature
of teaching and learning. This is simply because dissonance can be
used as a kind of intellectual wedge between learners' current beliefs
and "reality." What kind of dissonance producing ideas motivate people
to become educated? Peer pressure? Familial pressure? Fear of poverty?
Intellectual superiority? Societal class beliefs? Desire to become
‘someone’ and to make ‘something’ of their life? Or a selfless desire
to better the planet?
If our learning has been expensive, difficult, uncomfortable, or
even humiliating enough, we are not likely to admit that their
knowledge or understanding is in error or not valuable. To do so would
cause additional, sometimes unbearable dissonance. Pain and anguish
that tests our resiliency and character can be an effective (even
false) way of conferring value on any experience, including
educational experience. People committed to a narrow focus find it
most difficult to assimilate new information because it can be
interpreted as devaluing their acquired educational experience.
Two ideas can be found to be true in relationship to difficult
and expensive real life experiences or education courses:
- participants are more likely to reinforce their value of it and
to view it favorably regardless of its real quality, and
- the less likely they will be to permit the seeds of different or
conflicting beliefs and ideas to be planted in their thought garden.
A person is limited by their confidence that complex details and
difficult to understand subjects are beyond the understanding of an
average mind. Nevertheless, this has been exploited for years to
persuade us to give our power away to those ‘who know best’.
Much has been learned about what determines attitudes and beliefs,
the internalization of values, the consequences of decisions, and
the effects of disagreement among persons. The pressure to reduce
dissonance increases in proportion to the intensity of the
dissonance. Resistance to change depends on the extent of pain or
loss that must be endured and the satisfaction obtained from holding
onto one’s existing beliefs and attitudes.
Next time: Real Attitude Changing Circumstances;
specific strategies for overcoming dissonance.
He that reads and grows no wiser
seldom suspects his own deficiency, but complains of hard words and
obscure sentences, and asks why books are written which cannot be
understood. - Samuel Johnson
PABIA-NEWS Talk Back !
It's so good to speak to
someone who on the one hand is "uninvolved" and on the other hand
is obviously committed to using this brilliant tool to make people
feel good and air their views. -Sheila Belcher
In just two meetings PABIA has helped my spirits more than
anything or anybody since my accident. Your organization is a gift
from God. -Janey Mosier
"I
wish they would only take me as I am."
-Vincent Van Gogh
STEP OFF THE CURB
Neil Eskelin
Recently, two women knocked on our door and handed me a little
pamphlet with the title, "Millions Now Living Will Never Die." I
smiled and commented, "I think you should change the headline."
"What do you mean?" one responded. I replied, "It should say,
'Millions now living are already dead!'"
I was serious. I meet people every day who are lifeless. There is no
sparkle in their eye and no grip in their handshake. For all
practical purposes, they have given up.
Instead of living, millions of people watch life pass by. I doubt I
will ever be able to comprehend why someone would tune to a fishing
show on a beautiful summer day instead of
heading for the nearest lake. If the Good Book were being written
today, there would probably be a verse that reads: "Without a
television the people perish."
The Greek philosopher Hercalitus observed long ago, "You cannot step
twice into the same river, for other waters are continually flowing
in." The universe is changing. It's alive - just as we must be.
Don't allow yourself to become a spectator in the parade of life.
Step off the curb and join the procession.
(source: >^,,^< "InsPURRational Mews"
inspurrations@topica.com)
We
cannot change anything until we accept it. Condemnation does not
liberate, it oppresses."
-C. G. Jung, Psychological
Reflections
Pittsburgh Area Brain Injury Alliance
Upcoming Local Meeting Notices
Next
Pittsburgh Area meeting date: Tuesday,
February 3, 2004
TIME:
7:00 P.M.
TOPIC:
Mend The Mind, Mind The Body, Meet the Soul, with Dr. Frances
Bruce Marion.
PLACE:
1323 Forbes Avenue, Pittsburgh Near Mercy Hospital and AJ
Palumbo Center
ADMISSION:
Free
PARKING:
Free Parking Lot adjacent to the building.
Contact:
Ed Crinnion at 412.761.9870 or John Pistorius at 412.481.5482.
Refreshments
provided.
The next Monroeville Area
meeting date: Thursday,
February 5, 2004
TIME:
7:00 P.M.
PLACE: Cross Roads Presbyterian
Church, 2310 Haymaker Road, Monroeville, Pa.
TOPIC: Peer Support Discussion
with brief Video Presentation.
ADMISSION: Free
PARKING: Free parking lot
adjacent to the building.
Refreshments provided.
The
next Indiana Twp. meeting date:
Tuesday, February 9, 2004
Time:
7:00 P.M.
Place: the McLaughlin Education
Center of HealthSouth, Harmarville.
Admission: Free
TOPIC: Peer Support
Parking: Free Parking in the
HealthSouth Parking Garage
Contact: Tom Byrnes at 412-531-0343 or Ann Ciotoli
at 412-828-1300
Refreshments provided.
"Throughout history, it has been the inaction of those who could
have acted; the indifference of those who should have known better;
the silence of the voice of justice when it mattered most; that has
made it possible for evil to triumph."
-Haile Selassie
Thank You!
Thank
you Jim Sproat and
Realty Counseling Co., Inc. for your support of the PABIA-NEWS,
electronic newsletter and for the use of your digital camera. We
greatly appreciate your help. Anyone interested in contacting Jim
to thank him personally, can reach him at Realty Counseling Co.,
Inc., 1012 East Carson Street, Pittsburgh, PA 15203, by telephone
at 412.381.1166 or visit the Realty Counseling Co. website at
http://www.realtycounseling.com.
Realty Counseling Co., Inc. is a full service real estate company,
serving the Pittsburgh area for more than twenty-five years.
Thank You Dr. Mason Scott for the correction to the
COMMCARE waiver article that appeared in the last edition of
PABIA-NEWS, Support Lines. The number of recipients HAS NOT been
determined for next year. Anyone interested in applying for this
Waiver should do so immediately by contacting Nichelle Smith at
TRCIL by calling (412) 371-7700, ext. 145. Ms. Smith will ask for
some basic information and then have an enrollment specialist
contact you to schedule a meeting.
An Ongoing
Thank You to Ed Crinnion for: his untiring efforts, his
videotaping of meetings to give us a 'memory,' his continued
financial support of this organization and his sponsoring of our
website. Ed is one of a kind-to be sure!
"Better keep yourself clean and bright; you are the window through
which you must see the world."
-George Bernard Shaw
Subscribe or Unsubscribe From The
Pittsburgh Area Brain Injury Alliance Electronic News List
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"Four
hostile newspapers are more to be feared than a thousand bayonets."
-Napoleon, Maxims
Copyright notice
"PABIA-NEWS" may be copied and re-transmitted by electronic mail,
and individual copies of a particular "PABIA-NEWS" may be printed,
provided that such copying, re-transmission, printing, or other use
is not for profit.
Any copying, re-transmission, distribution, printing, or other use
of "PABIA-NEWS" must set forth the following credit line, in full,
at the conclusion of the portion of "PABIA-NEWS" that is used:
Copyright © 2004 John Pistorius
Reprinted with permission.
We may withdraw or modify this grant of permission at any time.
"When
you get to the end of your rope, tie a knot and hang on."
-Franklin D. Roosevelt
till next time-Seek to be and remain
Barrier-Free.
Strange as it
may seem, no amount of learning can cure stupidity, and formal
education positively fortifies it. -Stephen Vizinczey"
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[multipart/alternative]
Thank you, Paul Damon, for pointing out the error in the January 22, 2004
PABIA-NEWS, Support Lines regarding the next Monroeville Area Peer Support Group
meeting date. -John Pistorius
The following is accurate:
The next Monroeville Area meeting date: Thursday, February 12, 2004
TIME: 7:00 P.M. PLACE: Cross Roads Presbyterian Church, 2310 Haymaker Road,
Monroeville, Pa. TOPIC: Peer Support Discussion with brief Video Presentation.
ADMISSION: Free PARKING: Free parking lot adjacent to the building.
Contact: Denise Patterson at deenomad@aol.com or Paul Damon at 412.372.2888
Refreshments provided.
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