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Inside This Issue:
|
"Optimism is the faith that
leads to achievement. Nothing can be done without hope and
confidence." - Helen Keller |
Hi Folks,
We
had a great meeting tonight in Pittsburgh. Deborah Delgado of
Pennsylvania Protection and Advocacy, Inc. provided our twenty-six
attendees with powerful advocacy information packets. She also spent
time after her presentation talking with individuals about their
personal experiences. Thank you Ms. Delgado!
Please accept my apology for
not sending out an August Newsletter. My schedule did not permitted me
to put it together. Actually, this edition is a combination of items I
originally intended for August and September. Hopefully, I'll be able
to get back on track as the summer winds down. I'm almost back.
I've spent a great deal of
time renovating a duplex in the South Side Slopes neighborhood. We
built two decks that overlook the city and completely renewed the
interior of the house. What a great project! Now it is time to find
tenants. We also completed renovations on our home. Now it is back to
school time, with holidays fast approaching.
We have two articles about the
Individuals with Disabilities Education Act (IDEA) this month. Anyone
interested in learning more about the IDEA process is encouraged and
welcome to attend the upcoming Federal Regulations Workshop in
Washington, PA near the Meadowlands Racetrack. Please see the brief
article below for more information.
With school starting and as we
move into fall and winter here, I'm reminded of the increased chance
of poor road conditions. I ask you all to be extra cautious in and
around school zones and during inclement weather. Prevention is the
only cure.
John
P.S. Those of you who
know Ed Crinnion, please pass on your condolences to him. Both of his
parents have recently passed away. His father's death was due to brain
injury.
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"There are only two ways to live your life. One is as
though nothing is a miracle. The other is as if everything is."
- Albert Einstein |
Using Your Head

"Get Educated
about the
Presidential
Candidates and Vote!"
Mike Ferriter MSW
<mikeferriter@vzavenue.net>
writes:
THIS YEAR MORE THAN EVER WE NEED TO VOTE!!!
WE CAN MAKE A DIFFERENCE IN THE PRESIDENTIAL ELECTION THIS COMING
FALL!!! Those of us with disabilities are a large voting block. One out
of six people in the United States has a disability.
Get EDUCATED on disability issues and policies of Republican President
Bush and Democratic Presidential nominee John Kerry. What will they do
for us in the four years ahead?
It's very simple to access their web sites:
1. Go to Republican President Bush's official web site
http://www.georgewbush.com or
by typing Bush & Cheney 2004 in your search engine.
a) Click on health care at top of page
b) Read the section titled Created a Prescription Drug Benefit under
Medicare
c) Read the section titled Strengthened Medicaid and SCHIP
2. Go to Democratic Presidential Nominee Kerry's official web site
http://www.johnkerry.com/index.html or by typing in John Kerry and
John Edwards in your search engine.
a) Under Get Informed on the left side, Click on Communities
b) Click on American's With Disabilities for Kerry/Edwards
c) Under Plan for America on the left side, Click on Health Care.
Review Health Care For All.
d) Under Plan for America click on Education. Scroll down to Meet
Our Responsibilities To Our Schools and review "ensure that No Child
Left Behind works (etc.)"
e) Under Plan For America click on Civil Rights. Scroll down to
"Ensure Equality For Americans With Disabilities"
YOU WILL SEE HOW EACH SIDE LOOKS FROM OUR PERSPECTIVE. GET EDUCATED!!!
REGISTER & VOTE!!! WE CAN HAVE A LARGE IMPACT IF WE ALL VOTE!!!
Call your local town or city to find out about voting places
accessibility. Get an absentee ballot if the voting place is not
accessible.
Contact me if I can help.
Mike Ferriter MSW
mikeferriter@vzavenue.net
(Editor's note:
Voter registration forms can be picked up at your local post office. For
your convenience, we will have forms available at the upcoming support
group meetings in the Pittsburgh Area also. Assistance will be provided
for those who request it.)
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"When
we are truly present and mindful of all that’s around us, we learn
and grow and move with life. It’s taking everything we’ve learned
in the past and building on it. And as we live in the present we
build a foundation for the future." -Donna Karlin |
COMMCARE Waiver
ED Crinnion
For specific information
about this program, call 1-800-757-5042.
This is up-to-date
COMMCARE waiver information. This year, the number of available
openings for participants has been increased from 70 to 154 for the
Commonwealth of Pennsylvania fiscal year ending June 30, 2005.
The COMMCARE Waiver provides services in order to prevent
institutionalization and allow individuals to remain as independent as
possible. Eligible persons must have a diagnosis of traumatic brain
injury from a sudden insult or damage to the brain or it's coverings,
NOT of a degenerative, congenital or post-operative nature.
Financial Eligibility:
-
$2,000 $8,000 resource
limit
-
Income limit 300%
Federal Benefit Rate**
**$1,692.00 per month as of 2004 (it changes every January)
Functional
Eligibility:
-
Age 21 and older
-
Medically determinable
diagnosis of Traumatic Brain Injury (TBI)
-
Eligible for
Specialized Rehabilitation Facility services
-
Disability results in
substantial functional limitation in three or more major life
activities
-
Cannot be ventilator
dependent
Services:
-
Service coordination
-
Respite care
-
Prevocational services
-
Educational services
-
Supported employment
services
-
Community Integration
-
Environmental
Adaptations
-
Transportation
-
Assistive Technology
-
Personal Emergency
Response System
-
Chore services
-
Therapies
-
Personal Care services
-
Coaching/cueing
-
Night supervision
-
Counseling
154 openings are
available this fiscal year (ending June 30, 2005).
For COMMCARE Waiver Provider Enrollment and Consumer Referral, Kim
Cogan, COMMCARE Program Manager has informed me that the present area
contacts are:
Western Pennsylvania
Allegheny, Armstrong, Indiana, Butler, Beaver, Lawrence, and
Westmoreland counties.
Consumer applicant:
Ivy Turner - Enrolment Specialist Supervisor
1-412-371-7700 extension 146 1-800-633-4588
at Three Rivers Center of Independent Living (TRCIL)
900 Rebecca Ave., Pittsburgh, PA 15221
Washington, Fayette, and Greene counties.
Consumer applicant: Ken Feda - Service Coordinator Supervisor
1-800-401-2910
Erie, Cameron, Clarion,
Clearfield, Crawford, Elk, Forest, Jefferson, McKean, Mercer,
Potter, and Warren counties.
Consumer applicant: Katherine Reim - Service Coordinator
Supervisor
1-877-833-8997 ext. 101
Central Pennsylvania
United Disabilities
Services
1901 Olde Homestead Lane
P.O. Box 10485
Lancaster, PA 17605-0485
CSPPPD Program Manager: 1-717-397-1841 or toll free
1-800-995-9581
Adams, Bedford, Blair, Cambria, Centre, Clinton, Columbia, Cumberland,
Dauphin, Franklin, Fulton, Huntingdon, Juniata, Lancaster, Lebanon,
Lycoming, Mifflin, Montour, Northumberland, Perry, Snyder, Somerset,
Union, and York counties.
Eastern Pennsylvania
Liberty Resources, Inc.
1341 North Delaware Avenue
Suite 105
Philadelphia, PA 19125-4314
CSPPPD Program Manager: 1-215-634-2000 1-888-634-2155
Berks, Bradford, Carbon, Chester, Delaware, Lackawanna, Bucks,
Luzerne, Monroe, Montgomery, Northampton, Lehigh, Philadelphia, Pike,
Schuylkill, Sullivan, Susquehanna, Tioga, Wayne, and Wyoming
Back to
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"A new position of
responsibility will usually show a man to be a far stronger creature
than was supposed."
-William James |
Books
For Soldiers
Books For Soldiers is a soldier
support site that ships books, DVDs and supplies to deployed soldiers
and soldiers in VA hospitals, via our large volunteer network.
If you have old, but useable paperback books sitting around, collecting
dust, why not send them to a solider for a big morale boost?
Many of our volunteers have received email and letters from the soldiers
they have adopted.
Help us out, help the troops out, mail them your books.
http://www.booksforsoldiers.com/index.php
To get an
address of a service person or to post an address of a loved one, family
member, friend from church, or coworker who is serving overseas, you can
click HERE.
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"With every
civil right there has to be a corresponding civil obligation."
-Edison Haines |
Spotting the Leaders
by Patricia Fripp, CSP, CPAE
This is a story my Fripp Associate David Palmer, Ph.D. told at our
recent speaking skills class. Hope it makes you think and act like a
leader.
It was 1952. The Korean War had been going for three years...and the
North Koreans were short of resources, especially soldiers.
Both sides continued to take POW's, but it took money to build
high-security prison camps...and a lot of soldiers to guard them.
After studying the problem for a number of months, the North Koreans
discovered an innovative solution...that worked. New POW's were put in
a large, open camp and watched carefully for three days. Then 2% of
the prisoners were cut from the group and transferred to small,
high-security prison camps. The rest were transferred to large,
low-security camps, thereby saving money and especially soldiers.
Who were the 2%? The leaders, most likely to try to escape. Were they
just the officers? No, officers and enlisted men. And how could they
tell, just by watching? Behavior. And what drove that behavior?
Knowledge, values & passion.
Leaders don't simply accept their fate, they want to do more, learn
more, and be more!
-----
Patricia Fripp
Member: Speakers Roundtable
Web site:
http://www.speakersroundtable.com
Email:
office@SpeakersRoundtable.com
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"There is
only one thing more painful than learning from experience and that
is not learning from experience." - Archibald McLeish |
DISABILITY STATUS
OF THE CIVILIAN
NON-INSTITUTIONALIZED POPULATION
From The United States Census Bureau
The United States Census Bureau,
recently released its 2003 American Community Survey (ACS) Data Profile.
It breaks down "Disability Status of the Civilian Non-institutionalized
Population" for every state in the nation by state, city, county and
even census tract for persons 5 years and older.
During my search for
Pennsylvania Statistics, I learned that of the nearly 12 millions of
people living in this Commonwealth, more than 1.7 million report having
a disability. That means approximately 14 percent of our
non-institutionalized population reported having a disability. This
number is consistent with national averages according to Steve Gold,
author of stevegoldada Information Bulletins.
For the entire United States in
2003:
Population 5 -20 years was 63.5 m of whom 4.1 m (6.3 %) had a
disability.
Population 21-64 years 165.2 m of whom 19.9 m (12.0 %) had a disability.
Population 65 and over 33.9 m of whom 13.5 m (39.9%) had a disability.
Total population 5 and over was 262.6 m of whom 37.5m (14.3%) had a
disability.
This information can be very helpful in local advocacy work. We can use
it to convince local/state officials of the need for increased
accessible housing, voting accessibility, employment, transportation
services, SSI/SSDI, and other issues. It can be used to ask HUD to
increase the percentage of accessible units above the existing 5%.
The data is available on the
Census's webpage - www.census.gov.
-
click on American Community
Survey,
-
click on 2003 Data Profile in
the second paragraph,
-
click on you specific state,
county and census tract.
"The 2003 American Community
Survey universe is limited to the household population and excludes the
population living in institutions, college dormitories, and other group
quarters. Data are based on a sample and are subject to sampling
variability. The degree of uncertainty for an estimate is represented
through the use of a confidence interval. The confidence interval
computed here is a 90 percent confidence interval and can be interpreted
roughly as providing 90 percent certainty that the true number falls
between the lower and upper bounds."
To contact Steve Gold directly, write to
stevegoldada@cs.com
Back issues of other Information
Bulletins are available online at
http://www.stevegoldada.com
(Editor's note; The information contained in the above article was
compiled from the 9/3/04 stevegoldada Information Bulletin and United
States Census Bureau, 2003 American Community Survey (ACS) Data Profile)
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"We need to
restore the full meaning of that old word, duty. It is the other
side of rights."
-Pearl Buck |
IDEA UPDATE
THE IMBALANCE OF POWER
Tricia & Calvin Luker
We recently wrote about the fear that virtually all parents carry into
any situation in which they are advocating for their children [see "Fear
Factor"]. Some
readers have reminded us again that their fears are justified, but for
reasons beyond those about which we wrote in our Home page article.
They invited us to speak again about the balance of power in the IEP
development process and how that balance justifies parents’ fears. We
are happy to do so.
We believe it inevitable that Congress will continue to evaluate the
Individuals with Disabilities Education Act [IDEA]. One clearly
inequitable component of current IDEA law is the power school
districts have to control the IEP development process.
Consider this example. We were working with parents to develop their
child’s IEP and reached an impasse about what speech and language
services were needed. The parents requested an independent evaluation.
The special education staff person directing the meeting threw up her
arms and said, "That’s it. The meeting
is done." She immediately issued a verbal
denial of the parent’s request for an independent evaluation and
abruptly left the room with all the school staff in tow, leaving the
bewildered parents and us looking at each other in disbelief.
The parents had to file a complaint, and the matter remained in limbo
for months before it was resolved.
Now fast forward to a different, and quite opposite, approach by a
school. We recently were in an IEP meeting for another student, who
was being transitioned back to his neighborhood school. Before the IEP
team could complete the IEP, the special education director running
the meeting announced his intent that the student be placed in a
segregated facility indefinitely. We immediately objected, arguing the
IEP had not been completed yet, making any placement considerations
premature. We asked for the IEP form so that the parent could sign the
spot on the form indicating disagreement with the process and
placement and then request a due process hearing. The special
education director refused our request. We then left the meeting and
the following day filed a written complaint challenging the placement
outcome and the process used to conduct the meeting.
We subsequently learned that after we had left the meeting, the
special education director went ahead with the other school personnel
still there and filled in the missing and incomplete information.
Neither the parent nor we had any input, nor were we contacted to have
the meeting rescheduled so the parent’s input could be considered.
[The ironic thing about this particular IEP meeting is that it
initially had to be rescheduled because one school person did not show
up at the originally scheduled IEP team meeting even though we, the
parents and the other school personnel waited more than two hours for
the missing person to show up.]
In our first example the school terminated the IEP meeting when a
dispute arose. Neither we nor the parents had any authority or power
to force the meeting to continue. In the second instance, when we
followed the lead set in the first example and terminated the meeting
ourselves, the district just went ahead and completed the meeting on
its own after we left. No parent power, no parent authority, no parent
equity could stay the school from exercising its unilateral power over
how the IEP team meeting was conducted. The end result in both cases –
at least initially – was that the school’s interests took precedence
over the student’s interests and needs.
Consider, too, the current IDEA provision regulating mediation. As
written, IDEA now permits mediation as a means to try to resolve IEP
issues without the need for a due process hearing. If a parent rejects
a request for mediation, IDEA mandates that a disinterested party
familiar with the benefits of mediation must meet with the parent to
accentuate its positive aspects. If, however, the parent requests
mediation and the school rejects the parent’s request, there is no
similar requirement that the district or school be instructed on the
positive aspects of mediation. Our experience has been that the
schools reject mediation far more frequently than do the parents. Of
course, a school rejection of mediation only leaves the parents with
the costly and time-consuming option of embarking on a full due
process proceeding if they wish to ensure that their child’s
educational rights under IDEA are protected.
These power inequities become more frustrating when one considers the
unequal realities of IEP team meetings themselves. School personnel
are paid to attend the meetings as part of their jobs. Parents have to
take time off work to attend the meetings and might have to pay for
child care while they attend. School districts use attorneys paid for
with taxpayer dollars to prepare for and sometimes to attend IEP team
meetings. Parents do not generally have access to lawyers or advocates
to prepare for IEP team meetings and usually must pay to have the
attorneys or advocates attend the meetings with them. School districts
set the meetings to meet the time, space and scheduling needs of the
school personnel. Parents must juggle job, family, child care and
other responsibilities so that they can attend the meetings once
scheduled by the schools. If a school person cannot or does not attend
an IEP team meeting, the meeting is rescheduled if the person is
deemed an essential member of the team. If a parent does not attend
the IEP team meeting, the school likely will hold the meeting anyway
and act without direct parent input at the meeting.
These situations highlight some of the procedural issues in which the
balance of power favors the school. If parents want to try to correct
any problems created by unilateral school activity or action, they
must do so at great personal cost, including time away from home, job
and family, cost of advocates or attorneys and other inconveniences.
We believe Congress wants a fair and efficient IDEA. Unfortunately,
none of the recent IDEA reauthorization amendments or activities have
focused on or tried to correct either the "fear factor" or the
"imbalance of power" parents face every time they go into an IEP team
meeting on behalf of their child or children. Whatever might happen
with this year’s final IDEA reauthorization package, the special
education process for 6.5 million students will not improve
appreciably until their parents are less fearful, more equal
participants in the IEP process. We encourage Congress to recognize
and respond to this underlying reality.
Tricia & Calvin Luker,today's
parentvolunteer@ourchildrenleftbehind.com
**
Click here for
WHAT
YOU CAN
DO RIGHT
NOW
**
For more information, discussion forums, and our archives, please
visit
http://pub60.ezboard.com/bourchildrenleftbehind
©2004
Our Children Left Behind.
Our Children Left Behind
[OCLB] was created and is owned/operated by parent volunteers (Shari
Krishnan, Tricia & Calvin Luker, Sandy Alperstein, and Debi Lewis).
Permission to forward, copy, and/or post this article is granted
provided that it is unedited and attributed to the author(s) and
www.ourchildrenleftbehind.com. For more
about OCLB or to share information, please contact
parentvolunteer@ourchildrenleftbehind.com.
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"Regardless
of the endeavor, the “soft bigotry of
low expectations” is toxic. It poisons
dreams." -Debi Lewis |
You Are Invited
Ed Crinnion's "Extended Family" Picnic
Each year, Ed Crinnion tries to bring his
"extended family' together for an event that unites and enlightens all
who attend. This year, Ed is extending an invitation to all people
recovering from brain injury and their families to visit him at his home
for food, fun and camaraderie. "I consider all the people who come to
our meetings as my extended family." said Crinnion. "Everyone is welcome
to share in the fun at this picnic."
The picnic will be held Saturday, October
9, 2004 from 1 p.m. -9 p.m.. Ed's home is situated on five beautiful
acres at 630 Bascom Avenue at the intersection of Brighton Road near
Jacks Run Road. The picnic site has historical significance as it was
originally built as the Judge Taptitch estate. With plenty of level lawn
area, it is sure to provide ample space for food, games and fun for all
who attend.
Attendees are encouraged, (but not
required) to bring some of their favorite foods to share with others.
Ed will supply exact directions and a map
to anyone interested in attending. Just drop him a line at
evc@pabia.org or call (412) 761-9870.
What: Ed's
extended family picnic
When:
Saturday, October 9, 2004
Where: 630
Bascom Ave., Pittsburgh, PA
Contact:
Ed Crinnion (412) 761-9870 or email
evc@pabia.org
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"Most of us
can read the writing on the wall; we just assume it's addressed to
someone else."
-Ivern Ball |
Federal
Regulations and Communication Workshop
Parent Education Network (PEN)
Advocacy/Parent Support
Preparation Project
Federal
Regulations and Communication Workshop
The Individuals with Disabilities Education Act (IDEA), the federal
law governing special education, was signed into law in 1997. The IDEA
regulations were made available to the public in 1999. The regulations
contain valuable information in the furthering of our understanding of
the special education process. Knowledge of the federal regulations
and effective communication results in a reduction in conflict among
Individual Education Plan (IEP) members, allowing the team to work
more productively.
The IDEA regulations will be the focus of this Workshop, specifically
addressing the school age population. Participants will acquire a
working knowledge of special education. Reference materials and web
site addresses will be provided to attendees to enhance their ability
to find additional information when needed after this Workshop.
Communication techniques will be provided throughout the presentation.
Participants are expected to have some working knowledge of the
special education process to benefit from this Workshop.
You are cordially invited to attend the Workshop listed below. If you
have a copy of the federal regulations, please bring it with you.
Lunch will be provided.
When: September 30, 2004
Where: Holiday Inn Meadowlands
340 Racetrack Road
Washington, PA
Contact: Call PEN at 800-522-5827
REGISTRATION REQUIRED BY SEPTEMBER 23, 2004
If you are unable to attend after registering, please call PEN to
cancel the reservation. The Workshop is scheduled in cooperation with
the Parent Learning Support Group organized by Sue Schmidt.
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Responsibility: A detachable burden easily shifted to the shoulders
of God, Fate, Fortune, Luck or one's neighbor. In the days of
astrology it was customary to unload it upon a star.
-Ambrose Bierce, The Devil's
Dictionary, 1911 |
Money Follows the Person
Dear Advocate:
Below find a summary of the August 17, 2004 State Medicaid Directors
Letter #04-005. This letter encourages states to use the Money Follows
the Person concept to rebalance their states' long term service and
support system.
When a person moves into the community from a nursing home, CMS is
encouraging states to move the money that is currently paying for that
person's nursing home services to pay for the home and community
services for that same individual.
This will assist states in implementing the Olmstead decision but more
importantly it gives individuals in nursing homes who choose to leave, a
way to have their community services funded.
Has your state implemented a Money Follow the Person rebalancing policy?
If not, this is an opportunity to get it implemented.
If you need more information contact us at 512/442-0252.
The ADAPT Community
www.adapt.org
MONEY FOLLOWS THE PERSON (MFP)
STATE MEDICAID DIRECTORS LETTER - SMDL# 04-005
RELEASED TUESDAY, AUGUST 17, 2004
SUMMARY OF LETTER
a. Centers for Medicare & Medicaid Services (CMS) "committed to
continuing to assist states in implementing the principles of MFP under
existing authorities.
b. "Money Follows the Person refers to a system of flexible
financing for long-term services and supports that enables available
funds to move with the individual to the most appropriate and preferred
setting as the individual's needs and preferences change."
c. "A market-based approach that gives individuals more choice
over the location and type of services they receive."
d. MFP can incorporate the philosophy of self direction as well
as other service delivery options such as traditional agency and agency
with choice.
e. MFP strategies can be implemented using HCBS waivers and other
community service options such as Home Health and the Personal Care
Option.
f. States may add participants to their HCBS waivers to implement
MFP but must continue to demonstrate cost-neutrality.
g. CMS anticipates as individuals have greater choices in service
delivery, a smaller proportion of individuals will choose institutional
care.
h. CMS encourages states to reduce nursing facility beds to
assist a state in rebalancing its long-term care service system but this
is not a requirement.
NATIONAL ADAPT MAILING LIST - Adapt MiCASA List
http://www.adapt.org
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"When you blame others, you give up your power to
change." - Dr.
Robert Anthony |
Cognitive Dissonance XIII
Bringing in the Troops
John Pistorius
In
the beginning of this series I described my understanding of the term
cognitive dissonance. I’ve also given reference to the author of the
theory, Leon Festinger. Throughout these essays, I’ve shared some of my
personal experiences with various degrees of cognitive dissonance. And
I’ve told of some strategies which I’ve learned that can be used to
short circuit it. In this piece, I plan to reveal more of my
understanding of the short circuiting process with you.
I’ve previously expressed the matter of choosing between our belief and
the new evidence. Nevertheless, I know that we must realize and
understand that we have the power to choose. To make a choice we must
know that we actually have one. That is where “bringing in the troops”
comes into play.
Basic Training
I started bringing my anti-cognitive dissonance troops into action on
paper as written statements. These reflected and expressed my fight as I
battled with the dissonance that I was experiencing. When I started, I
wrote out my first statement and then revised it to be as accurate as
possible. As I’ve shared in the previous essay, it became; “I affirm
the following: I want to permanently improve my life, my circumstances
and my way of thinking.” I really did want to improve. That desire
proved to be the fuel that propelled me forward in this journey. It gave
me energy to fight the negative thought soldiers and overcome the
massive amounts of dissonance that I was experiencing. Good for me. I
hope that you can benefit from my sharing the paths I took in my tour of
duty. Maybe you have the desire to overcome dissonance in your life too.
If so, applying yourself to this process can benefit you.
I truly wanted to be free, therefore, I wrote;
“I
want to be free from the bondage and influences of negative beliefs,
ideas, thoughts and prejudices for the rest of my life. It is so.”
That was my second written statement after beginning this project. I
read and reread that sentence over and over again until I had imbedded
it deep in my subconscious. I really wanted to be free from the bondage
that I felt from those negatives. Yet I had no idea how to free myself.
Or at least that’s what I thought at the time. I was mistaken in that
belief. I did know how to free myself. I only needed to get past the
negative thoughts and prejudices that were blocking the gate to my open
minded acceptance of new ideas and strategies.
More Dissonance
I had two beliefs which were in conflict; a belief that I could make
this happen and a belief that I was unable also. Those conflicting
beliefs caused disharmony in my mind. I had to do something to eliminate
that dissonance. Before I could battle the major dissonance causing
cognitions, I needed to overcome the conflict that threatened to derail
me before I even started rolling. Therefore, I was willing to at least
attempt to do something to work toward my goal. And that willingness
proved to be the one most important factor in getting started.
I learned how to actualize and incorporate my knowledge through the
process that I am sharing with you here. Please remember this; at first,
I really believed I was powerless over the things that controlled me.
Yet at the same time I knew that I was able to direct myself beyond my
current circumstances. It was a paradox that had me locked into a
quicksand quagmire of insensitivity and inaction at times. It took a
great deal of effort to battle the negative thought soldiers that I had
stationed in my thought garden. They were thoroughly entrenched there.
Once
I began the process of liberating myself from the bondage and influences
of negative beliefs, ideas and prejudices, I experienced more cognitive
dissonance. I uncovered another set of dissonant cognitions. On one
hand, I wanted to be free from the negatives that were robbing me of my
joy. On the other hand, I believed that I was forever unable to change.
That caused disharmony in my mind. Nevertheless, as this battle
continued, I successfully pushed forward. I learned to specify exactly
what I wanted and to express or illuminate the opposition. Being as
exact as possible was a key to unlock success for me in my battle. I was
able to get past the negative thought soldiers positioned to stop me.
Through the process of writing and reading the words I’d written, I
realized that I had allowed myself to be tricked into believing
falsehoods. Once I came to the realization that I was allowing myself to
be deceived, I quickly changed gears. Like a Jeep in deep mud, I pressed
the pedal to the metal and began the slip-sliding, mud slinging process
of driving myself out of the enemy territory that I’d driven myself
into. After I realized that my thoughts were the driving force in
everything I experienced, I wrote the following:
“I want to build a new set of hidden command files in my mind that
will project me into the life that I desire. It is so.”
I studied that statement repeatedly until it became a part of me. I
really did want this. Therefore, I created this project to help myself
get what I wanted. I applied myself to this every day. Every day! I’m
not sure that it would have worked any other way. The command files are
the troops. During the years I’ve lived here on Earth I’ve experienced
many things. All of those experiences have propelled me to this point in
time, to become me, the person that I am right here, right now. I am
grateful for everything I’ve experienced, even the really painful
things; maybe even especially the painful ones. It is only through fire
that silver is refined. Nevertheless, I was unhappy with the dissonance
in my thinking. I wanted it to end.
Education
I can’t possibly expect anyone else to fully understand the driving
force behind this work. In fact, many would criticize or dismiss this
because of their beliefs. As I’m writing, I’m reminded of those who
believe only formal education has real value. Of course they have been
sold that belief by others and the very institutions that charge large
sums of money to “teach” people what others have already figured out.
Many of the greatest minds in the world were self-taught without the
rigid structures and in some cases the blinders of formal education.
Others coupled self-education with their formal education. The great Abe
Lincoln was a self-taught man. I use his example to refute the
preprogrammed chatter and negative thought soldiers that would dismiss
my findings as useless or irrelevant. I know this process worked for me
and I believe it can work for you.
There is no need to reinvent anything. Learning from other people has
great merit and value. This motivates me to share my experiences here.
I hope that it helps even one other person to overcome the energy
robbing dissonance in their lives.
Learning to Rebuild
As I continued in my troop building journey, I realized that I was
“learning to use my thought statements all day, every day to build my
new positive subconscious foundation.” So I wrote it out and
internalized that statement. Repetition served to reinforce the idea. I
was already doing it, so it was natural to reinforce the idea by
planting it in my thought garden.
I
put my ideas onto cards that I planted in my life. I had them in my
vehicle where I would “see” them every time I used it. I placed them in
strategic places throughout my life. Countertops, mirrors, dresser tops
and the refrigerator became powerful allies in my quest to assemble my
positive thought soldier battalion. These places became forts where I
found relief and reinforcement throughout my day-to-day living.
Every day I was bombarded with the statements that I converted into
thoughts that were aimed at doing what I expressed as my desire. I used
my ability to see, hear and think to my advantage. Once I saw the words
I had written, I read them aloud and heard them as they entered my mind
in my voice. As I processed the information with my eyes, it entered my
brain through my eyes. Then, as I read it aloud to myself, it entered
another section of my brain through my ears. Each step of the way, I was
also reading the words silently which affected still another part of my
mind. This strategic approach has proven to be successful for me. It is
an ongoing process however. Maybe if you are willing to do this it will
work for you. Undoubtedly, if you are not willing to believe that this
method might work for you, you will die without ever having given it a
chance. And death lasts a very long time.
Doubt Removal
As I realized that I was removing doubts, limiting beliefs, prejudices
and fears from my mind, I wrote it out as follows:
“I am starting to remove and eliminate all doubts, limiting beliefs,
prejudices and fears from my mind for now and forever.”
Once again, I knew positively that I was doing exactly what I wrote.
Using my strategy of reading it aloud and silently became another
statement. In
time, I used the following statement to reinforce all of the others:
“I am beginning to repeat my written ideas over and over aloud and
silently in a positive manner every day.”
I found the repetition to be important. At one point I had the thought
that this was really boring. I was reading statements that were already
true. Yet I knew that I needed to reinforce them. After all, I was only
starting to remove and eliminate all doubts, limiting beliefs,
prejudices and fears from my mind. Practice makes perfect. It occurred
to me that repetitive writing exercises were effective, especially for
learning. Writing “I will not talk aloud in class” two hundred times
might have actually planted the thought and brought about the desired
result. And so I wrote, read, reread and repeated the process.
As I progressed with this project, oftentimes I’d find a card with the
blank side facing up. Every time I found one of my cards in my pocket or
on a dresser or countertop, I had something to read that reinforced my
practicing. Even passive reading placed the words in my mind. So I
created the following statement and placed it on the back of every card:
“I read one card per day, every day, 10 times or more, aloud upon
waking, repeatedly during the day and 10 times aloud just before I fall
asleep.”
Then I wrote:
“I am starting to build a bank of positive and constructive thoughts,
ideas, words and statements in my subconscious mind that will be the
foundation of my new life. It is so.”
As I studied this statement, I realized that the words I chose were
actually descriptive of the very real process that I was going through.
I was starting. I was storing or in a positive sense “banking” these
ideas. They were positive ideas that were “constructing” a new base for
me to operate from. And I believed that this work would be the
“foundation” of my new life. How could I draw that conclusion? Each day
is the beginning of my life from this moment forward. It is easy for me
to understand and believe that my work is the foundation of my new life.
In the short term, what I do today becomes the foundation for tomorrow.
The collection of my days, weeks and months become the foundation for
all of my tomorrows. Therefore, it is true that I’m building a bank of
positive and constructive thoughts, ideas, words and statements in my
subconscious that will be the foundation of my new life. I was being
transformed by the renewing of my mind. So can you.
In time, I realized that I was becoming willing to refer back to
specific statements when I needed to reinforce particular ideas or to
overcome obstacles. I refined the following statement later in the
process, but moved it up in my list of cards because I realized the
importance of becoming willing to use these ideas as needed, not just in
a regimental order:
“I am becoming willing to refer back or forward to specific cards to
assist me when I need more building blocks of thought reinforcement to
overwrite any particular patterns.”
My willingness may not be shared by everyone. It was an important part
of the process for me however. I believe that willingness to repeat and
refer back or forward in the long list of statements I’ve created can be
developed. If one wants to succeed at this, willingness to do whatever
is necessary can be the difference between success and failure.
Disciplined Action
Overcoming Dissonance through this process requires discipline, and
therefore without discipline, most will fail. Discipline is critical. Oh
what a nasty word discipline is to so many
people of the world; those who want what they want when they want it.
And “NOW!” is the operative word. Without discipline humans are destined
to live miserable lives. Much of the
suffering
we live through in this life results from our lack of discipline or the
undisciplined actions of other people. Much of the cognitive dissonance
that I’ve experienced in my life was a direct result of undisciplined
actions of other people or me. Therefore I wrote the following:
“I am learning that I have
control over everything in my life with my thoughts through discipline.”
This was an important milestone for me. I was taught that things were
out of my control. Now I was learning that I was in control of my life.
True, things happen that are out of my control, but my response to those
things is completely within my control. And my response makes all the
difference in my life.
It may be raining right after the weather forecaster predicts sunshine
and cloudless skies. Nevertheless, I can choose to be upset by the
reality vs. the belief or I can accept what is, as it is and go forward
in my life without the experience of negatives associated with the
dissonance. Yes, the forecaster was mistaken. Perhaps I planned a day on
the beach or a hike in the forest. I could still do those things. Maybe
I would not enjoy the beach in the rain. I could enjoy something else.
Shifting my desired reality to the actual reality without experiencing
cognitive dissonance is a powerful outcome of this project. This is not
to say that I never experience the pained state of mind resulting from
disharmonious cognitions. Indeed, I do. Nevertheless, I recover much
faster now that I know that I am in control of my responses. Besides,
I’ve asked for serenity to accept the things I cannot change, the
courage to change what I can and the wisdom to know the difference.
Anyone who sustains cognitive impairment can become angry and bitter
over the losses they experience. Or they can move forward with resolve
to become all that they can be. And that is the essence of overcoming
dissonance.
Learning that I was truly able to rewrite my hidden, subconscious files
became the motivation to continue. I was able to see results. My
repetitious strategy really worked. Was it because I believed it? Or was
it because I applied myself to this with diligence and determination? In
any case it worked and continues to work. And that is what really
matters.
You have the power to make it work for you. Quit blaming others for your
failures, you alone hold the key to your success. Make it happen!
Next Time: More Basic Training
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Table of Contents
|
"A man sooner or
later discovers that he is the master-gardener of his soul, the
director of his life."
-James Allen |
Free
Support Group Development Tools
Free Help for
anyone Starting or Running Peer Groups
Contact John Pistorius at jp@pabia.org
or call (412) 481-0443 to receive a free CD with the support group tools
created so far. These tools can also be sent via email or postal mail.
Back to
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|
"No man was
ever endowed with a right without being at the same time saddled
with a responsibility."
-Gerald W. Johnson |
Pittsburgh Area Brain
Injury Alliance
Upcoming Meeting and
Social Event Notices
Pittsburgh
Monroeville
Oakland
Swissvale
Indiana Twp.
Indiana County
Bowling Event
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Table of Contents
Next Pittsburgh Area
meeting date: Tuesday, October 5, 2004
TIME: 7:00 P.M.
TOPIC: To Be Announced
PLACE: 1323 Forbes Avenue, Pittsburgh
Near Mercy Hospital and AJ Palumbo Center
ADMISSION: Free
PARKING: Free Parking Lot adjacent to the building.
Contact: Ed Crinnion at 412.761.9870 or John Pistorius at
412.481.5482.
Refreshments provided.
Upcoming Pittsburgh Meeting Dates:

-
October 5
-
November 2
-
December 7
Back to group list
The next Monroeville
Area meeting date: Thursday, September 9, 2004
TIME:
7:00 P.M.
PLACE: Cross Roads Presbyterian Church, 2310 Haymaker Road,
Monroeville, Pa.
TOPIC: Beyond Survivor-Barrier Free
WITH: John Pistorius
ADMISSION: Free
PARKING: Free parking lot adjacent to the building.
Contact: Denise Patterson at
deenomad@aol.com or Paul Damon at
412.372.2888
Refreshments provided.
Upcoming Monroeville Meeting Dates:
-
September 9- John Pistorius
-
October 14 - ACHIEVA will be speaking on Special
Needs Trusts
-
November 11 - Tom Byrnes will be speaking on Brain
Injury Management
-
December 9 - Holiday Party
Back to group list
Oakland Meeting
Second Monday and Fourth
Tuesday of each month.
Meetings
are held twice each month from 7-9 PM in room 5047, Forbes Tower, Meyran
Street, Pittsburgh, Pa. This meeting is facilitated by a student of the
University of Pittsburgh under the direction of Professor Mike Pramuka.
Upcoming Meeting Dates:
-
September 13
-
September 28
-
October 11
-
October 26
-
November 8
-
November 23
-
December 13
-
December 28
Back to group list
The next Indiana Twp.
meeting date: Tuesday, September 14, 2004
Time:
7:00 P.M.
Place: the McLaughlin Education Center of HealthSouth,
Harmarville.
Admission: Free
Parking: Free Parking in the HealthSouth Parking Garage
Contact: Tom Byrnes at 412-531-0343
Refreshments provided.
Upcoming Indiana Twp. Meeting Dates:
-
SEPTEMBER 14
SPEAKER: Maria Smith, Achieva - The Family Trust, for Families
& Children with Disabilities to Understand Trust Options, available
Services and Disability – Based Financial & Estate Planning
-
OCTOBER 5 (Note: First Tuesday of the Month)
SPEAKER: Joseph L. Romano, Esquire – Legal Issues for the TBI –
Funding and Planning for the Future
-
NOVEMBER 9
SPEAKER: Larry Doperak, CCAC, Disabilities Counselor – Accommodations
in Higher Education
-
DECEMBER 14 Holiday / Christmas Social
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Indiana Area Brain
Injury Support Group
When:
Thursday, September 16, 2004
Time: 7 to 9 pm
Topic: Peer Support Discussion
Place: Indian Haven Community Home, 1675 Saltsburg Ave., Indiana, PA
15701
Admission: Free
Parking: Free Parking Lot adjacent to the building.
Contact: Becky Myers 724.349.5934
Back to group list
NEW Swissvale Area Brain
Injury Peer Support Group.
Mike and Marilyn Peters
have agreed to host a new peer-to-peer support group in Swissvale. The
meetings are to be held on the first Monday of each month in the social
hall of the St. John's Lutheran Church, Swissvale, PA. All persons
interested in peer support are welcome and encouraged to attend.
Due to summer month
scheduling, this meeting has been postponed for a few months. Please
call in advance of attending to insure accuracy of date and time.
When: First Monday of the month.
Time: 7 to 9 pm
Topic: Peer Support Discussion
Place: Social hall of the St. John's Lutheran Church,
Swissvale, PA.
Admission: Free
Parking: Free Parking on street adjacent to the building.
Contact: Marilyn Peters at (412) 271-1821
Back to group list
Western PA BIM
/ HS Recreational Bowling League
Where:
Fun Fest Entertainment Center, 2525 Freeport Road, Pittsburgh, PA
15238
WHEN: Fourth Monday of each month.
COST: $7 per person, for 3 games, shoes, 2 slices of pizza &
unlimited fountain drinks.
TIME: 3:30 PM TO 6:30 PM on Lanes 1 through 6
Bowling at Fun Fest is Wheel Chair Accessible and there are Bowling
Ramps.
For more information contact Tom Byrnes at
tbmsky@verizon.net or call
412-531-0343.
Upcoming Bowling Dates:
-
SEPT. 27, 2004
-
OCT. 25, 2004
-
NOV. 22, 2004
-
DEC. 27, 2004
Back to group list
Back to Table of Contents
|
Dr. Miller says we
are pessimistic because life seems like a very bad, very screwed-up
film. If you ask "What the hell is wrong with the projector?" and
go up to the control room, you find it's empty. You are the
projectionist, and you should have been up there all the time. -Colin
Wilson |
Thank You!
These are the people that make it possible.
Ed Crinnion (412)
761-9870
for your continuing efforts in keeping the
Pittsburgh Area Brain Injury Alliance together, funding the
organization's website and supplying refreshments for PABIA meetings.
Becky Myers
(724) 349-5934
for your continuing commitment to peer support in Indiana County.
Denise Patterson and
Paul Damon (412)
372-2888
for your ongoing coordination of
the Monroeville Area Peer Support Group.
Ann Ciotoli, MaryAnn
Stritmatter
412-828-1300 and
Tom Byrnes (412)
531-0343
for your commitment to peer support in
Indiana Twp.
Malin
Lowenadler-Shadel and Lisa Taubman,
for your help with the group in Oakland.
Mike and Marilyn
Peters for your help
with the new group starting in Swissvale.
Jim
Sproat and Realty Counseling Co. Inc.
(412) 381-1166
for your support of the
PABIA-NEWS, electronic newsletter. We greatly appreciate your help.
Anyone interested in contacting Jim to thank him personally, can call or
visit his website at
http://www.realtycounseling.com.
PABIA-NEWS Contributors-
your insight, articles, poems and comments are vital to the success of
this publication.
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"We are
made wise not by the recollection of our past, but by the
responsibility for our future."
-George Bernard Shaw |
PABIA-NEWS Subscriber Policy
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Action
springs not from thought, but from a readiness for responsibility.
-Dietrich Bonhoeffer |
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"God has entrusted
me with myself."
-Epictetus |

Till next time, Seek to be and remain
Barrier-Free. You have the power.
|
"Far too large a section of the treatment of
disease is to-day controlled by the big manufacturing pharmacists,
who have enslaved us in a plausible pseudo-science... The blind
faith which some men have in medicines illustrates too often the
greatest of all human capacities - the capacity for self
deception...we need a stern, iconoclastic spirit which leads, not to
nihilism, but to an active skepticism - not the passive skepticism,
born of despair, but the active skepticism born of a knowledge that
recognizes its limitations and knows full well that only in this
attitude of mind can true progress be made." - William
Osler...to the Ontario Medical Association, June 1909 |
ETC.
Thank you for subscribing and reading this
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Required Disclaimer: Nothing
contained herein is intended to be substituted for medical, legal,
accounting or other professional advice. The information provided herein
should not be taken as a health-care diagnosis, treatment, course of
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|
"Wisdom is
knowing what to do next; virtue is doing it."
-David Star Jordan, The
Philosophy of Despair |
|